Ava is a vivacious, smart, normal four year old with a love of Peppa Pig, Shopkins and Paw Patrol who has just been diagnosed with Leukemia. Her struggle began in January 2017 when she became unable to walk due to ankle pain. After her parents pressured doctors for an x-ray, they diagnosed her with a buckle fracture in her ankle and sent her home with a walking boot.
Still unable to walk, she began to experience back pain that was waking her up at night. Her parents, Brady and Amanda, once again pushed doctors for diagnostics and she was placed under general anesthesia for several MRIs. They found fractures in her body, including in her spine. She then underwent a total body scan and due to the multitude of fractures, was diagnosed with Osteogenesis Imperfecta Type I - or Brittle Bone Disease.
By now Ava hadn't been able to stand or walk for over a month and had endured countless needle sticks and blood draws. She was to undergo 4-5 hour infusions, four times a year, until she was done growing. However, Amanda and Brady were told she would lead a relatively normal life.
Ava went in for her first infusion to be done in two parts...to ease her body into it. She had five hour infusions on March 13 and 14. The doctors said Ava would experience some relief from her pain within two weeks. No relief came. On Friday, March 24, 2017 Ava was admitted into Children's Hospital in Omaha...just for the day, just for total body MRIs. This poor girl has endured HOURS of attempted IV insertions, shots and blood draws and due to some suspicious areas on her MRIs, they kept her there and scheduled three different biopsies on Monday, March 27.
They only did one. The bone marrow biopsy clearly revealed abnormal cells. Little Ava was diagnosed with Leukemia.
On Wednesday, March 29 she underwent a lumbar puncture and has been typed with B-Cell Acute Lymphoblastic Leukemia. She will go through almost two years of chemotherapy and needs extensive physical therapy.
Brady and Amanda's bills will pile up quickly as they do everything they can to get Ava back to her happy self.
auction for ava
An auction is being held on Friday September 8th, 2017 for Ava Reinert, daughter of Brady and Amanda Reinert, at Baqara in Runnells, IA. 4-year old Ava was recently diagnosed with Leukemia and is currently undergoing treatment at the Children’s Hospital in Omaha. All proceeds from this auction including ticket sales will go directly to Brady and Amanda to aid in the seemingly endless medical bills needed to cure their precious little girl.
Doors will open to Baqara at 4:00pm to begin bidding on silent auction items. The live auction portion of the evening will begin at 7:30pm. Tickets can be purchased at https://www.eventbrite.com/e/an-evening-for-ava-tickets-34833197030 for $10 each. Food and drinks will be available throughout the evening.
In support of this event, we are currently soliciting donations from local businesses. These donations can be merchandise, coupons, gift cards, gift certificates or any other items that you are willing to donate. This event does not qualify for a 501c3 tax-exemption so all donations are considered gifts. Each business will be promoted in event advertising and at the event. For those interested in helping Brady and Amanda by donating an item for the auction, please submit donations by August 10th, 2017 to the Baqara’s address (below) or contact Clinton Webster (515-681-5619 or firstname.lastname@example.org) to coordinate pick-up. Money donations can be made at the event by cash, check, or credit card.
We look forward to seeing everyone come out to support this young lady in her fight. Your generosity is greatly appreciated.